Uncategorised: Useful links, Organisations & Support groups

Local Offer

Family hubs

Places to join or register with

Education and advocacy

Diagnosis, health, therapies & mental health

Sensory i.e sight and hearing

Parent Carer & family support

Activities ( with link to list of more activities, sensory rooms etc)

Grants and borrowing services

Adapted clothes & other equipment

Other services

Travel

Carer support groups

Benefit advice & links

  • Support for parents and carers of pre-school children through the Portage Service
  • Drop-in sessions where you can speak to SENDIASS about your child’s education and
    how their needs can be met
  • Informal peer support groups where you can meet other parents and share experiences
  • Advice from Educational Psychologist at drop-in sessions Workshops offering advice and support around your child’s health and development, such as eating, sleeping and continence delivered by the 0-25 Growing Healthy Team.

Find the Help for Families Virtual Hub HERE. Phone 03000 261 111

Durham County Council – Register as disabled

Print form and fill in to register as disabled and also apply for a disabled bus pass. Children if eligible will also get a free carer element on bus pass. Telephone : 03000 269425

Durham Children and Young People’s Network (CYPN)

Local authorities must keep a register of children & young people with special educational needs and / or disabilities and in Durham this is the CYPN . Register your child / young person ( 0- 25 years) to receive email or text alerts covering the latest news & developments, short break activities, events & general information, a local discount card and whilst stocks last a Max card which gives family discounts at large number of UK attractions. Telephone: 03000 265 792

Durham County Carers Support

A charity supporting unpaid carers 18 years+ in County Durham. They can help with information and advice, help with accessing and completing benefit and grant forms, carer breaks , carers card, carer support groups, counselling, training and give you a chance to have your say. You DO NOT need to be getting disability benefits or carers allowance to register. Telephone: 0300 005 1213 or email admin@dccarers.org

Access Card

Access Card is in response to frustrations shared by disabled people and live music promoters in how disability was evidenced, and how needs for reasonable adjustments were communicated. The card is wideley accepted at major event venues across the UK And beyond, and even more widely taken simply at face value. It costs £15 for 3 years. 

CEA Cinema card

Enables a disabled cinema user 5 years+ to receive a complimentary ticket for someone to go with them when they visit a participating cinema or theatre . Card costs for £6 a year but cardholder must be in receipt of certain disability benefits. Telephone: 01244 526 016

Discounts for carers

Exclusive discounts, cashback & vouchers for care assistants, live-in carers, those that care for loved ones, and everyone in between. Free to register and you’ll find discounts and deals on a range of things e.g holidays, shopping brands, food , insurance, motoring, insurance & utilities. 

Durham SENDIASS (Durham Special Educational Needs and Disability Information Advice and Support Service) 

SENDIASS offer independent advice and support with any issues with regards to your young persons school and / or education. Telephone: 0191 5873541 or 03000 267007 or email sendiass@durham.gov.uk

IPSEA

Offer free & independent legally based educational information , advice & support plus training on subject like EHC plans. Telephone: 01799 582030

SOS!SEN

Helping you secure the right SEN provision for your child. SOS!SEN has been supporting families for more than 20 years to help them secure the right special educational provision for children and young people with SEND. Phone 020 8538 3731

Not Fine In School

Information, Support, Research, & Action for School Attendance Difficulties. Their aim is to offer information, research and campaigns that relate to ‘School Refusal’ and barriers affecting school attendance. INFORMATION: A space to join with people who are concerned about children experiencing difficulties attending school – for reasons including anxiety and other mental health difficulties, unmet SEND needs, or bullying. ACTION: A place for people who would like to be involved in raising awareness or campaigning for better support and provision; for improved recognition of family and children’s perspectives; and for a change in thinking about the issues that affect school attendance. RESEARCH: A space to share research, related information and news. A place to join in with research into school anxiety & refusal as it is linked to our current university research activities. We would also be happy to support other researchers working in related studies too. 

Durham Portage Service

Are a home visit educational service for preschool children who have development learning difficulties, physical disability or other additional support needs. Telephone: 03000 263 350 or email portage@durham.gov.uk

For more links regarding schools, education etc please click HERE for our SEND support page or HERE for our home education / EOTAS page. 

Neurodevelopmental Pathway.

The new needs led pathway for ADHD and Autism diagnosis from age 5-18. A panel will decide, based on the child / young persons referral form ; whether they will be put on to the pathway or not. Referral form here. For children aged under 5 please speak to your GP or Health Visitor. 

County Durham Neurodevelopmental Needs Led Support website.

This website is a guide for families in County Durham with children and young people who may have needs associated with neurodiversity and was done in partnership with MCT.  Parents and carers have told us which information they think would be most useful to share, so please use the toggles to open and close the sections that you’re interested in.

HDFT

Harrogate and District NHS Foundation Trust. They provide specialist Children’s Services for children and young people, 0-19 years of age in County Durham, with physical, communication, learning and developmental difficulties or disabilities which affect health, development and wellbeing.

Direct links to certain parts on their website:

0-25 Growing Healthy Service – Health Visiting.

The 0-25 team are co-located in the Family Hubs and Children’s and Young People’s buildings across County Durham, integrated with partner organisations who provide services for children, young people and families. Further information about where we are located is available on otheir App or through their Single Point of Contact. The service is community based, with appointments and visits offered in homes, Family Hubs, education, colleges and community settings. Single point of contact phone number 03000 263 538 or email hdft.durhamhealthychildservice@nhs.net

CAMHS & the single point of access

 County Durham and Darlington have a single point of access for referrals and self-referrals to the CAMHS services. To contact the team please email tewv.camhscountydurhamdarlington@nhs.net or call 111 and option 2. On their website where you can find information about how they can help children and young people support their mental health.

CAMHS Crisis team

Call 111 and choose option 2. Available 24/7.

Kooth

Free, safe and anonymous support around mental health for 11 years+. They offer a judgement-free forum to get advice, help others and share your story. You’re not alone – access support from other young people and professionals, all at your own pace. Email parents@kooth.com.

Qwell 

Online emotional wellbeing and mental health support for adults.  A free, safe and confidential space to share experiences and gain support from their community and qualified professionals to share experiences and gain support from our community and qualified professionals.

Waythrough

Free, confidential support for mental health and wellbeing support. Their vision is to break down the barriers that stop people getting the support they need to live a life they value. They tackle poverty and disadvantage in communities, through mental health, drug and alcohol, housing and related support.
Telephone 01325 731 160

The Mix

The Mix is the UK’s leading digital support service for young people. They are their to help you take on any challenge you’re facing – from mental health to money, from homelessness to finding a job, from break-ups to drugs. Advice, tips and essential support for young people A non-judgemental safe space. Talk to them via their online community, on social or their counselling service. Powered by charity Mental Health Innovations.  Phone number 020 70092500.

If U Care Share Foundation

A charity that offer a range of services aimed at prevention of suicides, intervention and supporting those bereaved by suicide. Text IUCS to 85258 for a free and confidential chat, (in partnership with SHOUT). Telephone 0191 3875661 

Catch22

Catch22 is a social business, a not for profit business with a social mission. For over 200 years they have designed and delivered services that build resilience and aspiration in people and communities. Catch22 works at every stage of the social welfare cycle, from cradle to career. Phone 020 7336 4800 or email information@catch-22.org.uk

Shout

Provide urgent mental health support nationally. Struggling to cope? They are here for you – confidential, free and available 24/7. Shout is powered by charity Mental Health Innovations. Text “SHOUT” to 85258 to contact the Shout Crisis Text Line, or text “YM” if you’re under 19 and need support. 

ManHealth

Local ManHealth peer support groups save lives. Supporting men through difficulties in their mental and physical ill health, ultimately to prevent suicide. Training also provided to businesses. Phone 01388 320023 or email info@manhealth.org.uk

Young Minds

The UK’s leading mental health charity for young people. Their website offers full of advice and information to give young people the tools to look after their mental health. They empower parents and professionals to be the best support they can be to the young people in their lives. They also give young people the space and confidence to get their voices heard and change the world we live in.  Together, we can create a world where no young person feels alone with their mental health. Phone 02070895050 or email ymenquiries@youngminds.org.uk

Beat

The UKs leading Eating disorder charity. Helpline – call 0808 801 0677. Their mission is to end the pain and suffering caused by eating disorders. Eating disorders are serious mental illnesses that ruin and, too often, take lives.  Their helpline encourages and empowers people to get help quickly, because they know the sooner someone starts treatment, the greater their chance of recovery. They listen to you, help you to understand the illness, and support you to take positive steps towards recovery. They also support family and friends, equipping them with essential skills and advice, so they can help their loved ones recover whilst also looking after their own mental health. They also campaign to increase knowledge among healthcare and other relevant professionals, and for better funding for high-quality treatment, so that when people are brave enough to take vital steps towards recovery, the right help is available to them. Phone number 0300 123 3355 or email info@beateatingdisorders.org.uk

Durham Mental Wellbeing Alliance

Working Together To Improve Mental Health and Wellbeing Across County Durham. Durham Mental Wellbeing Alliance is a free service that provides mental health, wellbeing and recovery services to those needing support. They support those struggling with mental health and wellbeing, that is low level and low needs to regain independence through recovery orientated goals. They offer help with supported accommodation, physical activities, support with employment, befriending, vocational & educational activities, mental health hospital discharge service, suicide postvention support, peer support, drop-in service, relationship support, bereavement support , women only activities and floating support. Phone 0300 304 5527 or email  referrals@durhammentalwellbeingalliance.com

County Durham Resilience

They are primarily an early-intervention service and aim to build resilience within communities in County Durham. County Durham Resilience service is a community support service for adults (18 years and over).We aim to build resilience within communities in County Durham. This includes; where people feel lonely and isolated, and have experienced mental health difficulties, which includes those impacted by COVID. They are there to help people, bridging the gap between services, and helping to improve social wellbeing and mental health. There is also a online service HERE. Phone – PCP reception on 01325 321234, call County Durham Administrator on 07568 429771 or email resilience@pcp.uk.net 

Emotional health and resilience team

Emotional health, advice and guidance for 5-19 years. The emotional health and resilience team can support when a child or young person first shows signs or asks for help with their emotional health or managing emotions. They also have a duty line for advice or guidance or to discuss a referral. They are open Monday to Friday, 9am – 5pm. Call them on 03000 263 532 or download the Growing healthy App with further information.

OT – Occupational therapy NHS 

They work with children and young people from birth up to 19 years of age who have difficulties or a disability which affects their ability to carry out everyday tasks. Telephone to self-refer. Telephone: 0191 387 6359

SALT- Speech and Language therapy NHS 

 They work with children and young people from birth to 19 years old, who have speech, language and communication needs or difficulties with eating, drinking and swallowing. Telephone to self-refer. Telephone: 01429 522717.

NOTE – Provider of SALT is changing to County Durham & Darlington NHS foundation trust on 1st April 2025! More info HERE

County Durham Children’s Therapy Team

Durhams Children’s Physiotherapy Service works with children of all ages from 0-16 years old, (and 0-18 if in specialist education). They aim to support our children and young people to achieve their potential and encourage active participation in their daily life.

Their team is made up of Chartered Physiotherapists and Physiotherapy Assistants and aim to provide quality, child centred care to manage physical conditions. They work independently across the Trust and also complete clinics alongside Paediatricians, Orthopaedic Surgeons and Orthotists. More info HERE

Phone: 0191 3876436

Durham sensory team

Durham Sensory Team provides assessment, support, advice and direct intervention for children and young people with a sensory loss and their families. The team comprises the Deaf and Hearing Support Team and the Vision/Multi-Sensory Support Team and includes Qualified Teachers of the Deaf, Qualified Teachers of Children and Young People with Vision/Multi-Sensory Impairment, a Specialist Speech Therapist, a Habilitation Specialist, a Communication Support Worker, a Deaf Worker, and Specialist Support Workers.  More information HERE. Email – CYPSsensoryteam@durham.gov.uk or telephone : 03000 264530

Sensory Worx

Sensory and specialist therapy service. It is a leading sensory and specialist therapy service for adults, children and young people based in County Durham and operate throughout the whole of the North of the UK. 
They specialise in delivering tailored solutions to developmental, social and learning needs and offer a wide range of assessment and therapy programmes. They work with families, schools and organisations across the region and are are incredibly passionate about providing the highest quality, supportive therapy services to allow their customers to achieve their potential, gain quality of life and access the support they need at the right time. 

Email –  sensoryworx@outlook.com or telephone 0191 592 0007

Heel and Toe

Provide free conductive education therapy to children with cerebral palsy and other physical disabilities in the North East and surrounding areas. They can also provide occupation therapy and speech and language therapy. Telephone: 0191 386 8606

Tree tops Children’s Occupational Therapy

Tree Tops Occupational Therapy specialises in Sensory Processing Difficulties (SPD) and Sensory Integration (SI) in Newton Aycliffe and Stockton. Since 2002, they have been working with families, schools, and health professionals to assess and treat individuals, raise awareness, and train Occupational Therapists for effective support in clinics and schools. Children, young people, and adults with various difficulties and conditions can receive support through: Interventions (sensory integration),Training for parents and schools,Sensory processing support, Handwriting support,Extreme behaviour support,Food therapy, Sensory diets,Motor skills support & Parent support group.

To arrange an appointment with them download and complete their Assessment Request Form and return by email to hello@treetopsot.co.uk. Telephone 01325 304 411 or Email: hello@treetopsot.co.uk

Healthwatch County Durham

Healthwatch County Durham helps you and your family get the best out of health and social care services in County Durham. They are the independent champion for people who use health and social care services. They are there to make sure that those running services, put people at the heart of care. Our sole purpose is to understand the needs, experiences and concerns of people who use health and social care services and to speak out on their behalf. They focus on ensuring that people’s worries and concerns about current services are addressed. We work to get services right for the future.  Phone 0800 3047039 or email healthwatchcountydurham@pcp.uk.net

Patient Advice and Liaison Service – Pals

The Patient Advice and Liaison Service (PALS) offers confidential advice, support and information on health-related matters. They provide a point of contact for patients, their families and their carers. PALS provides help in many ways. For example, it can: help you with health-related questions, help resolve concerns or problems when you’re using the NHS and can tell you how to get more involved in your own healthcare.  PALS can give you information about: the NHS, the NHS complaints procedure, including how to get independent help if you want to make a complaint and support groups outside the NHS. PALS also helps to improve the NHS by listening to your concerns and suggestions. There are 6 PALs  in County Durham so find your nearest HERE

Useful Vision

Help and Support for Visually Impaired Children and their Families. They also offer a wide range of accessible activities & events for visually impaired children, and their families, throughout the North East. Register your child today and attend their next event! Email office@usefulvision.org.uk or phone 0191 447 2600. 

Royal Society for Blind children

RSBC are here to support you and your family if you have a blind or partially sighted child aged 0 – 25. They believe that children and young people need a strong family to be able to grow and flourish and sometimes when you receive a diagnosis that your child has sight loss, you, your child, and your family might need some extra support. From the moment you receive a diagnosis that your child has sight loss, if there is a change in vision, if your child or family are going through some changes that are difficult to manage or any other time when life just seems a bit tough, get in touch and let one of their Family Practitioners be there to support you. They can support the whole family and have a range of activities that you and your child can join to connect with others both in person and online like Family Fun Days, Audio book Club, Cooking sessions, Support with Assistive Technology, Sisterhood Group, Creative sessions, Sensory Stories and much more. Phone 0203 198 0225 or Email connections@rsbc.org.uk

Royal National Institute of Blind People (RNIB)

If you need someone who understands sight loss, RNIB (Royal National Institute of Blind People) is here for you.  Everyone who is blind or partially sighted has their own unique experience, so they don’t take a one‑size‑fits-all approach. They offer a range of products and services to help you to maintain your independence and live the life you want to lead. Their services include: Sight Loss Advice Service offering information, advice, practical and emotional support. This includes our hospital-based Eye Care Liaison Officers (ECLOs), RNIB Living Well with Sight Loss courses, opportunities to connect with others, over the phone, online and at events. Accessible reading materials, like Talking Books, newspapers and magazines. RNIB Bookshare, a free online collection of educational books and resources and The RNIB Online Shop selling products to help you live independently. Phone 0303 123 9999 or email helpline@rnib.org.uk

National Deaf Children’s Society

A national charity dedicated to breaking down barriers for every deaf child. They provide free, independent support and information to parents, carers, deaf young people, extended family members and professionals. They provide opportunities to safely connect with other families and professionals through events, online forums and local groups. They also campaign for change on a local and national level, to create a world without barriers for all deaf children. Email ndcs@ndcs.org.uk / helpline@ndcs.org.uk or phone 0808 800 8880

Durham sensory team

Durham Sensory Team provides assessment, support, advice and direct intervention for children and young people with a sensory loss and their families. The team comprises the Deaf and Hearing Support Team and the Vision/Multi-Sensory Support Team and includes Qualified Teachers of the Deaf, Qualified Teachers of Children and Young People with Vision/Multi-Sensory Impairment, a Specialist Speech Therapist, a Habilitation Specialist, a Communication Support Worker, a Deaf Worker, and Specialist Support Workers.  More information HERE. Email – CYPSsensoryteam@durham.gov.uk or telephone : 03000 264530

Durham County Carers Support

A charity supporting unpaid carers 18 years+ in County Durham. They can help with information and advice, help with accessing and completing benefit and grant forms, carer breaks , carers card, carer support groups, counselling, training and give you a chance to have your say. You DO NOT need to be getting disability benefits or carers allowance to register. Telephone: 0300 005 1213

Kinship Carers

A kinship carer is defined as a family member, friend, or other connected person who steps in to care for a child when their birth parents are unable to do so, either temporarily or permanently. A high % of children and young people being looked after by a kinship carer have some sort of SEN. Below are some kinship specific organisations. 

  •  Full Circle – support for children living with a kinship carer 
  • More than Grandparents independent charity. Support group for kinship carers and their children. Weekly peer support meetings, 1-1 support, advice, signposting and advocacy. Weekly support group in Sunderland – Thursday 10am- 12pm at 301-304 The Place, West Sunniside, Sunderland. SR1 1QX. Telephone 07501 191338 or email morethangrandparents@gmail.com
  • Kinship – The leading kinship care charity in England and Wales. They are there for kinship carers – friends or family who step up to raise a child when their parents aren’t able to. They offer advice, support, workshops and events.

Local Kinship Support groups – 

  • Consett kinship coffee and chat group which runs on the 3rd Thursday of each month from 10am to 12pm. For more information click HERE.
  • Seaham kinship group which runs on the 1st Thursday of the month during term time, 10am to 12pm. For more information click HERE
  • Newton Aycliffe kinship group which runs every other Tuesday at 10am to 12pm. For more information click HERE 
  • Peterlee kinship group which runs on the 3rd Wednesday of the month at 10am-12pm. For more information contact Christine and Josie on 07932447531
  • West Rainton kinship group which runs every other Wednesday of the month at 10am-12pm. For more information contact Maggie on 07368297553 or Donna on 07999941799
  • Durham kinship group starting May 2025 will run on the 1st Saturday of the month at 10am-12pm. Venue TBC. For more information contact Stacy on 07964233996
  • County Durham kinship closed Facebook support group. Find it HERE. For more information click HERE

North East Autism Society

Services include training for parents / carers , support groups, toddler groups, education for children aged 3-19, post 19 education and social/vocational training along with supported and open employment opportunities for adults. They provide year round residential placements and an ever-increasing range of social and leisure opportunities within the North East community for people of all age. 

Telephone: Check website for department number you require.

National Autistic Society

Provide individuals with autism and their families help, support and services that they can access, trust and rely upon and which can make a positive difference to their lives. Telephone: 0808 800 4104

PDA Society ( Pathological Demand Avoidance)

They provide information, support and training about PDA for individuals, families and professionals. Email info@pdasociety.org.uk 

Autistic Girls Network

They are a small registered charity working to support, educate, and bring change. There are resources on on their website to help, and it will benefit you to take a different route through the site depending on the support you need. There are routes to learn about :

  • autistic girls 
  • gender diversity among autistic people

and routes to follow if you’re

  • an autistic woman
  • a parent
  • friends and family
  • teachers and 
  • other professionals or 
  • employers.

email hello@autisticgirlsnetwork.org

ADHD Foundation – The Neurodiversity charity

The Neurodiversity Charity working in health, education & business.  info@adhdfoundation.org.uk

ADHD UK

A their to help people with ADHD thrive. hello@adhduk.co.uk

Autism Understood

A website about autism, for autistic young people. Their website was made so that everyone can gain a better understanding of what autism is, since most people we meet seem a little confused about what autism actually is. 

Include In Autism 

Autism support services delivering early intervention and high level crisis prevention services. They provide autism support services delivering advice workshops and training for parent support groups and individuals with ASD, ADHD, and associated conditions EHCP. Phone 0191 580 5279 or email Information@includeinautism.org.uk

Contact

Support families with the best possible guidance and information. They bring families together to support each other and help families to campaign, volunteer and fundraise to improve life for themselves and other. Telephone: 0808 808 3555

Action for Children

They are working to improve life for children in the UK, so every child has a safe and happy childhood. They help disabled children and young people gain confidence and independence. They are there for families when they need them. A disabled child should have the same opportunities as any other child. But caring for a disabled child or young person can be challenging. Even the most experienced parents and carers need someone to turn to for help and advice. The tailored support they offer helps families cope – and gives disabled children a chance to thrive.  Direct link to Families with disabled children section HERE. Email ask.us@actionforchildren.org.uk

Disability North

A user-led registered charity promoting inclusion, independence and choice for disabled people, carers, and their families by providing information, advice and support on any aspect of disability. Phone 0191 284 0480 or email reception@disabilitynorth.org.uk

Barnardo’s

The UK’s largest children’s charity. Changing childhoods, changing lives. Their aim is to help children and young people feel safer, happier, healthier and more hopeful – and have somewhere they feel they belong. They believe children, young people and families should feel safe, happy, healthy and hopeful – whatever their background or circumstance, or wherever they are in the UK.  Phone number for North of England office is 0113 393 3200.

Mobilise Online

Online support for unpaid carers. Looking after a family member or friend, who has a disability, long-term illness or is elderly? Well you might be struggling to find support with anything from finances to practical help, from mealtimes to continence, from hospital discharge to finding time for yourself. They can help. They work closely with Local Authorities and Carer Support Organisations across the UK and provide free online support to unpaid carers. Our enhanced services with our partners also include free support calls and coaching programmes with our carer support team. Enhanced services are offered where we have been commissioned by your local council, NHS trust or carer support service.

Carers Trust

They work to transform the lives of unpaid carers through their innovative programme work, influencing policy, undertaking research and providing specialist resources for professionals.

Full Circle

Full Circle is a specialist therapeutic service for children and young people with complex backgrounds who have had negative childhood experiences, who are not doing as well as we would expect, even though they are now safe from harm. They offer support for children living with Kinship carers, Support for care leavers, support for children who have been sexually abused, support for children placed in Durham by other councils, support the virtual school, designated teachers and schools and training for professionals. Email fullcircleadmin@durham.gov.uk or Telephone 03000 264 730

Daisy Chain / Autism Central

Daisy Chain are an award-winning local charity supporting autistic and neurodivergent children, young people and adults and their families. Website HERE  / Durham specific website page HERE 

Autism Central – Daisy Chain are the Regional Hub for North East and Yorkshire for Autism Central. This is a new programme designed and developed to deliver high-quality alanand accessible autism information, education and coaching for families, parents, carers, and personal assistants. Autism Central has been commissioned by NHS England’s Workforce, Training and Education Team and is delivered by nine not-for-profit organisations. – Autism Central webpage HERE 

Downs Syndrome North East

Down’s Syndrome North East is the leading organisation for the help and support of all people with Down’s Syndrome and their families and friends. They are a registered charity run entirely by volunteers. They offer support and advice for parents and carers, run classes, training & sessions for children and adults &  have a range of events on across the region. Phone: 0870 765 2121 or Email: contact@dsne.org.uk

Caudwell children

Caudwell Children works tirelessly to transform the lives of disabled children in the UK. They have provided more than £85 million to help over 60,000 children with 653 different medical conditions – providing specialist family support by funding the equipment, treatment, therapy and services that disabled children need. Those services include a UK-first in-house autism service, specialist equipment, employability training, help to reduce household costs, short breaks activity clubs and vital at-home support for disabled children.  The charity’s ambassadors include Peter Andre, Joan Collins, Rod and Penny Stewart, Lady Forsyth-Johnson and Christine McGuinness. Phone 0345 300 1348 or email charity@caudwellchildren.com

Seashell Trust

Dedicated to providing a creative, happy, and safe environment for children and young people with complex learning difficulties and additional communication needs. Seashell educates and .cares for children and young people with complex learning difficulties and disabilities and additional communication needs. Phone 0161 610 0100 or email info@seashelltrust.org.uk

Swan UK (Syndromes Without A Name)

SWAN UK supports families affected by a syndrome without a name – a genetic condition so rare it often remains undiagnosed. They work with UK based families of children and young adults up to 25 years old who are searching for a genetic diagnosis. They are the only dedicated support network for these families in the UK and are run by the charity Genetic Alliance UK.

Talking Therapies

A talking therapy service for people in Co. Durham & Darlington 16+ to help with common mental issues either via telephone or face to face. Open weekdays 8am-8pm.  For emergencies call 111 – 24 hrs. You can self-refer via their website here. 

Humankind  

They offer risk and resilience support services to children and young people in a variety of areas of need, such as:

  • Young carers and young adult carers
  • Children and young people effected by parental substance misuse
  • Young people who are lesbian, gay bi-sexual or transgender
  • Young people who have queries or issues around their gender identity

They also provide wide ranging support to families through the delivery of Family Intervention Projects (known as FIPs). Telephone: 01325 731160 or email hyac@humankindcharity.org.uk 

First contact Service 

If you have a concern about a child or young person’s welfare who lives in County Durham. Telephone: 03000 267 979

Family action / Bridge Young carers

They support children, young people and their families who have a challenging caring responsibilities. Telephone: 0191 3832520

Cerebra

 A charity dedicated to helping families with children with brain conditions ( including Autism , anxiety and ADHD)  discover a better life together. They provide grants and training including sleep workshop etc plus a book lending service on specialist books. Their website also includes guides etc too.  Telephone: 0800 3281159

The Children’s Trust – For Children with brain injuries. 

The Children’s Trust is the UK’s leading charity for children with brain injury and neurodisability. They deliver rehabilitation, education and community services through skilled teams who work with children and young people, and their families. Email enquiries@thechildrenstrust.org.uk or phone 01737 365 000

AccessAble

AccessAble, your online Accessibility Guide, their to take the chance out of going out. Founded in 2000, AccessAble is the leading provider of access information for disabled people in the UK, featuring 10,000s of places of interest. Every single venue featured has been visited in person by one of our own specialist surveyors. Their aim is to give you the detailed information you need so that you can make up your own mind whether somewhere is right for you, before you get there. We cover anywhere you would visit as a member of the public, including:  Council offices , parks, historic landmarks , tourist attractions , colleges , sports grounds , restaurants , libraries , cinemas , hotels , hospitals & shops. Email hello@AccessAble.co.uk or phone  01438 842 710

Eric Knows

Working with autistic, disabled and ND children and adults, striving for a more inclusive world where peoples strengths are celebrated and people reach their potential. A website to find accessible things to do & places to go. A directory of activities & locations across the North of England that champion accessibility. Phone 07455 919148 or email info@ericknows.co.uk

SEND Empowering Inclusive Communities ( SENDEIC) 

Being a parent carer can be difficult, and you may need some time to help you cope with family life. Short breaks are designed to help you have a break from your caring responsibilities.  SENDEIC (The Durham County Council Short Breaks central point of contact ) can help Advice, signpost and enabling access for your child or young person , regardless of any additional needs if you are struggling to find anything suitable or experiencing any barriers in order for you to get a break if you don’t already. Website HERE. Telephone: 0300 0260270 or email sendeic@durham.gov.uk

DADLG ( Durham Area Disability Leisure Group)

An amazing charity that provides sports, Leisure And Social Opportunities For Children And Young People With Disabilities And Their Families Living Within Durham And Surrounding Areas.  They run weekly groups-  youth club, Infinite air, Bounce house & boxing. They also offer a range of other fabulous activities and trips terms time & during school holidays.  Website HERE. Telephone : 07592 366454

Dimensions – Autism friendly cinema screenings

 Dimensions UK work with cinemas, libraries, museums and Belong by GAME Arenas. Each venue’s autism friendly training is tailored to their environment and guests. Adjustments include reduced sensory stimulation, increased signage and autism training for staff. Our training is developed with autism and industry experts, so it works for both our guests and the venues.  Autism friendly screenings are held at over 300 cinemas nationwide: ODEON, Cineworld, Vue, Showcase, Picturehouse, Everyman, Light and some independent cinemas. The screenings take place regularly and have adjustments to make the cinema experience more enjoyable for people with autism or sensory sensitivity. To find out more about Autism Friendly screenings you can visit the Dimensions website linked above or the Dimensions Facebook page, or your local cinema. Phone 0300 303 9001 or Email autismfilms@dimensions-uk.org

Rainbows Sensory Space

A SEND support multi-sensory soft play centre located in Seaham that supports children & adults. It has been specifically designed to support children, young people and adults with special needs and disabilities, their families, schools and groups. They provide opportunities for bridging the barriers that disabled people often face by creating an accessible, inclusive and nonjudgemental environment where children and adults can control a variety of sensory experiences in a safe space . They have access to ceiling track , hoists, a disabled toilet with hand rails and height-adjustable changing bed. They offer private hire to families, schools and groups, coffee mornings, SEND support groups, SEND social opportunities, (after school clubs), playgroups, baby sessions, home education peer support, training events for parents/carers and birthday parties,  Specialist therapy sessions available –  music therapy, story massage and sensory stories. Pre-booked sessions only, no drop-in sessions available. Email: hello@rainbowssensoryspace.com or telephone: 07968314561

Learning a new way CIC

Learning a New Way CIC is a non-profit organisation based in South Durham. It provides a variety of community activity groups aimed at improving the wellbeing of families and offering meaningful opportunities to those who may not otherwise have access. The organisation specialises in supporting neurodivergent families but also works with other SEND conditions such as cerebral palsy, Prader-Willi syndrome, and global developmental delay. They run Inclusive Activity Groups,Drop-off Sessions,Family Wellbeing Group,SEND-Only Groups,Holiday Activity Clubs,
Support for Ages 4-16,Neurodivergent Family Support,Support for PECs and AAC, Devices,Courses for Autism & ADHD,Parental Wellbeing and Social Events and Monthly Peer-Support Coffee Mornings. Email:
admin@learninganewway.co.uk

Haystax

Haystax Hub is a community interest company near Consett with a passion for supporting young people with diverse needs. The Hub offers a wide range of inclusive educational, vocational, and well-being opportunities for young people. Each of these is designed to meet the needs of the individuals involved and offer meaningful experiences. For
some, this will be a one-off session that helps them connect with nature. For others, it may be a long-term program
designed to teach vocational skills, helping them access meaningful employment when they leave education.

Examples of what offer is  –  family and volunteer-run coffee shop, outdoor inclusive play area: featuring sensory equipment and sensory rooms, events lodge which is available for private bookings and school visits, 
woodland nature trail and wild wood outdoor play area, changing places toilet, forest Sessions, parties, and shared events with Noo Noo’s CIC. Email: enquiries_haystax@outlook.com or phone: 07596856654

Noo Noo’s CIC

They deliver outdoor Forest sessions for all, and fun engaging disco/party experiences. They focus on community sessions where families are welcome no matter of age, ability, background or personality.  We are an inclusive site where we hope everyone feels safe, engaged and seen. Come and join them to access nature, learn about our natural world, engage in bushcraft/woodland activities, play alongside friends, family, make new bonds, dance like no one is watching, live your best life and keep your mental health balanced. Email: Experiences@noonoos.org or phone:07792649297

Durham City Youth Project

Durham City Youth Project is for young people aged 8-19.  We have lots of different sessions open to everyone, across County Durham. They’re based in Framwellgate Moor, but we have sessions at Langley Park, Wheatley Hill and Seaham.

☆ Durham City Youth Project has received funding to support young people with mild to moderate mental health conditions. Their free mental health support services are available to all young people, aged 13 – 19 years old living in County Durham. Please get in touch with us to make a referral or for further information. Mobile: 07883 730550 Email: counselling.dcyp@gmail.com. 

☆ Seniors group for age 13+ delivers open access sessions offering sports, arts and crafts, cooking, personal and social education sessions, team building and an opportunity just to come and socialise.

☆ Juniors group for 8-12 is an open access, all inclusive club. We offer sports, team games, arts and crafts, movie nights, cooking, holiday activities and Xbox. 

Phone 0191 383 2819 or Email durhamcitycentreyouthproject@gmail.com

Alan Shearer Centre

A specialist recreational, sensory and social resource for disabled people of all ages, catering to a wide spectrum of need. Facilities are completely free to use.  The Alan Shearer Centre is a highly specialist, respite, residential and social facility for people living with complex disabilities and acute sensory impairments. Situated in its own grounds on the outskirts of Newcastle but we have lots of families from County Durham who use their facilitates. The Alan Shearer Centre comprises three specialist facilities on the same site:

The Alan Shearer Activity Centre– A specialist recreational, sensory and social resource, for people of all ages living with disabilities, catering to a wide spectrum of need. Facilities are completely free to use and include a hydrotherapy suite, sensory rooms and cave, a music room, seasonal activities and a café. Overhead tracking and hoists are fitted throughout, enabling full accessibility to all areas for those with limited mobility.

The Alan Shearer Short Break Centre – Currently closed. Providing highly specialised respite breaks in a safe and specially adapted environment for people living with a range of disabilities and behavioural issues, the centre allows parents and carers a well-earned rest. It is the only short break centre in the North East with its own on-site Activity Centre, set within several acres of private and beautifully landscaped grounds.

Our Alan Shearer Specialist Residential Home.  Situated within the Alan Shearer Centre, our specialist home offers residential accommodation for adults living with profound and multiple disabilities, offering longer term, safe and nurturing care and support. In addition, our residents living with disabilities have full access to the on-site Activity Centre.

Contacts – Alan Shearer Short Break Centre – Email: alanshearershortbreak@stcuthbertscare.org.uk
Telephone: 0191 267 8128.  Alan Shearer Specialist Residential – Email: asresidential@stcuthbertscare.org.uk
Telephone: 0191 264 8925. Alan Shearer Activity Centre Email: reception@alanshearercentre.org.uk
Telephone: 0191 267 8118

Pathways 4 All / Tim Lamb Centre

A North East parent led charity, offering family friendly play and leisure facilities for children and young people with disabilities & additional needs. Based in Benton but we have lots of families from County Durham who use their facilitates. The Tim Lamb Centre offers free specialist activity and leisure facilities for disabled children/ young people and their families.  Our Centre is open to families with a child/ young person at any stage of their diagnostic journey and whatever their additional needs.  Their facilities include a soft play area with adjoining cafe, a well equipped sensory room, large multi-purpose hall with indoor trampolines, a toddler playroom, teenage/ games room and a computer suite.  We also have a large fully enclosed outdoor playground, (with high fencing) which includes a range of inclusive play and sensory equipment. The building is fully wheelchair accessible and we have a disabled toilet that includes a full size changing bed and ceiling hoist facility. Phone 0191 266 5233 or  email info@pathways4all.co.uk

FOR MORE ACTIVITIES , SESSIONS & SENSORY ROOMS FOR CHILDREN AND YOUNG PEOPLE CLICK HERE

Also see more below under Support Groups

Family Fund 

The UK’s largest charity providing grants for families raising disabled or seriously ill children and young people 0-17. Grants have certain eligibility requirements and you can currently apply 9 months after your last award. They can also provide a one off grant for young adults 18-24. Telephone: 01904 550055

CrackerJacks Children’s Trust

Provides grants to disabled children and young people throughout the UK. Grant application form HERE. Email grants@crackerjacks.org.uk

Newlife

The UK’s largest charitable provider of specialist equipment for disabled children. Every day, Newlife is changing the lives of disabled and terminally ill children across the UK. They offer a lifeline for families, providing life-changing and life-saving specialist equipment when and where it’s needed. Childhood cancers, birth defects, accidents, diseases and infections can all cause disability. Phone 01543 462777 or email info@newlifecharity.co.uk

Lifeline 4 Kids

Helps to pay for life-changing equipment for children with special needs and/or disabilities. 

Whizz-Kidz

The UK’s leading charity for young wheelchair users. They empower young wheelchair users by providing the wheelchairs, equipment, support and confidence-building experiences they need, and campaigning for a more inclusive society. Aims to transform the lives of young disabled people by providing equipment, support, and life skills. Phone 020 7233 6600 or email info@whizz-kidz.org.uk

Learning Library

Members can borrow games, jigsaws, toys, musical instruments , discovery boxes and specialist sensory equipment some of which may be beyond the reach of the average family budget. They are delivered direct to your home for free. Telephone: 01388 420267

Tabithas’ Toys

They loan sensory toys and equipment to children who are disabled and have complex needs. They able to loan Toys and Equipment to children who are in receipt of Disability Living Allowance, the loan period is 6 months. This a free service. They can loan toys and equipment to children 0 to 16 years who live in the North East of England.  Telephone: 07824618204 or 07824618302

Disability Facilities Grant

If a member of your household struggles to get around the house safely because they are elderly or disabled, there may be help available. Disabled facilities grants assist people to live independently by helping to fund suitable adaptations to their properties. A maximum of £30,000 is available.

You must have an assessment by an occupational therapist first, as a grant is based on your essential needs. They will come to your home and assess what aids and adaptations might be available to help. Contact Social Care Direct to arrange an assessment. All applicants must undergo a financial means test, unless the grant is for a disabled child. This will indicate what, if any, financial contribution must be made towards the work. If you claim certain benefits you may be eligible for a full grant. Contact details for the grant department –  scd@durham.gov.uk or Telephone  03000 267 979

Disability Grants.org

A easy to use website to help find available grants that are right for disabled people.  Whether it’s for equipment, a holiday, housing or anything else.  

TBC

Live Well North East

Live Well North East are a  CIO, registered with The Charity Commission. They are an inclusive, accessible, and engaging organisation providing a person-centred, holistic approach to optimum wellbeing for all. They provide integrated and bespoke services for people of all ages including those living with mental health challenges, neurodiversity, deprivation, social isolation, physical health needs and Special Educational Needs and Disabilities (SEND). Telephone 07842 528007 /07530 361626 or email info@livewellne.co.uk

County Durham Wellbeing For Life Service

There to help you with your health and wellbeing. From healthy eating, exercise to mental wellbeing and stopping smoking. Wellbeing for Life is a service commissioned by Durham County Council and delivered by County Durham and Darlington NHS Foundation Trust and Pioneering Care Partnership (PCP) who have years of knowledge and experience of working and supporting local people across County Durham. Their services aim to empower you to tell us what is important to you and to support you to make positive choices that will benefit you and your life!

One-to-one support – Wellbeing Practitioners will work with you over eight to twelve sessions to set a health plan, which will include small achievable goals that you would like to achieve. The one to one sessions typically last for one hour and is time for you to focus on yourself and what support you would like from the service: eat healthier / lose weight / gain weight, be more active, stop smoking, educate you in alcohol and drug awareness and access services in your local community

Group Support –  Wellbeing Practitioners will work with you in a friendly group session, which typically lasts for one hour- in order to: be more active , learning about healthy eating and practical cooking and improve your mental wellbeing, 

Investing in Children

Children and young people have rights, and are full citizens now. They are the experts of ‘being them’ and of their own ‘lived lives’. They have a dedicated team of staff, volunteers and student placements, running groups, projects, forums, training and research putting children and young people at the centre of all they do.

Investing in Children is a Community Interest Company. Established in 1995 originally as a partnership between Durham County Council and the NHS its purpose is to promote the rights of children and young people, and to ensure that their voices are heard in decisions that are made about them within public and voluntary sector services. In recent years Investing in Children has become more involved within the mental health agenda with links to both Children’s and Adults’ Services in a range of roles including coordination and project delivery as well as leading on young people’s engagement and participation. Investing in Children currently oversees the coordination and delivery of the following projects:

  • The coordination of  the County Durham Time to Change Hub
  • Delivery of the Young Adults Support Cafes (YASC) Groups – 16-21-year-old emotional wellbeing peer support projects
  • The coordination of the Emotional Wellbeing Locality Forums
  • The coordination of the Alternative to Crisis/ Preventing Admissions work
  • The coordination of the Children and Young People’s Mental Health and Emotional Wellbeing Network
  • Joint coordination of United Voice (Children and Families Advisory Board for mental health co-delivered with Rollercoaster Family Support)
  • Support role within the CAMHS Participation Groups

Investing in Children is part of the membership of the Mental Health Strategic Partnership Board which includes the Children and Young People’s Local Transformation Partnership (LTP). Phone 0191 307 7030 or email info@investinginchildren.net

EPEC

Empowering Parents, Empowering Communities (EPEC) is a parenting approach that trains local parents to lead groups that support other local parents. They run courses including a being a Parent of a child with Autism course. All courses are highly interactive, involving small and large group discussion, role play, demonstrations, information sharing and reflection. You will be able to practice and use your new skills in everyday life to achieve specific goals. Email EPEC@durham.gov.uk

We Care Bespoke. 

We Care Bespoke Ltd provides bespoke support for vulnerable children, young people, and adults throughout the North East of England. They provide tailored support to the local authorities, private social care and supported housing organisations. Their head office is in Chester-le-Street with our dedicated team who have more than 100 years of experience in social care, and we are committed to providing high-quality bespoke services. They also have a sensory room ( See activities section). Phone 0191 300 9212 or Email info@wecarebespoke.co.uk

Journey Enterprises

Journey Enterprises is a local charity providing day services for young people and adults with complex learning disability. They provide activities in  three day centres (Hubs) and a wide range of activities in community. All are undertaken in small groups of friends. Telephone: 01434 608118

National Children’s Bureau

For over 60 years, the National Children’s Bureau has been fighting to reduce the inequalities that prevent children from achieving their full potential. They work to build a better childhood for every child, by championing their right to be safe, secure and supported. Email enquiries@ncb.org.uk or phone and leave a voice message 020 7843 6000.

The Communication Trust

 A coalition of over 50 not for profit organisations. Working together they support everyone who works with children and young people in England to support their speech, language and communication. Tel:0207 843 2526

Durham County Council – Register as disabled

Print form and fill in to register as disabled and also apply for a disabled bus pass. Children if eligible will also get a free carer element on bus pass. Telephone : 03000 269425

Blue Badge

Who may be eligible for a Blue Badge? Examples of who may be eligible, are people who: have evidence of enduring and substantial difficulties with walking ability and/or managing journeys outdoors, are registered as severely sight impaired , are children under 3 who:

  • on account of a condition must always be accompanied by bulky medical equipment which cannot be carried around with the child without great difficulty; and/or
  • on account of a condition must always be kept near a motor vehicle so that, if necessary, treatment for that condition can be given in the vehicle or the child can be taken quickly in the vehicle to a place where such treatment can be given.
  • have evidence of non-visible (hidden disabilities) such as autism, dementia and anxiety disorders that causes you to:
    • be unable to walk
    • experience very considerable difficulty when walking, which may include very considerable psychological distress
    • be at risk of serious harm, or pose a risk of serious harm to other people, when walking

Individual Blue Badge permits cost £10. It can take up to 12 weeks to process a Blue Badge application. Apply HERE. Email bluebadgescheme@durham.gov.uk or Telephone 03000 269 425

Newcastle airport hidden disabilities information

Airports can be busy environments and they understand that for those people who are travelling with hidden disabilities this can make going on holiday a stressful experience. Website includes info on autism passports , airport social stories ” My airport journey” ,  my airport activity book and other helpful information for your journey or try Passenger assistance general information for more general airport information and help available.  Newcastle airport also has a sensory area located at gate 31,  for departing passengers with hidden disabilities such as dementia, autism, sensory issues and mental health disorders to use when the experience of travelling through the airport becomes overwhelming. 

Teesside Airport – Passenger assistance and disabilities info. 

Bridge Bus travel card

Durham local authority operate the scheme in partnership with Arriva North East and Go North East. If you show the card to the bus driver or bus station staff they will give you extra help. 

Trainline

Info on Disabled Train Tickets HERE -Their goal is to help visitors plan their rail journey and get live train running times, accessibility, and facility info. Trainline is Europe’s leading train and coach app. They work with 270 rail and coach companies to offer their customers travel to thousands of destinations in and across 45 countries in Europe. They also have a “trainline” app. 

Resources for 16+ HERE

Waves Parent Support Group 

NEW!  If you care for a child or young person (0-25yrs) with emotional or mental health difficulties, pop in to their support groups once a month in Durham, Newton Aycliffe, Peterlee & Darlington. Email – tewv.waves@nhs.net for more info. 

Little Treasures

Are a parent-led charity that supports families and their children who have autism or are going through assessment right across Co. Durham and surrounding areas. They run stay-and-play sessions, adult groups ( together with Autie Mates) , parent support groups and run courses and workshops. They also have a closed support group Facebook page for help and advice.

Little SENDsations

Are a new parent led charity who organise events, activities and support for children with all disabilities and their families locally. They have a facebook page and facebook group

Parenting Mental Health – North East England

Has taken over the old Rollercoaster Facebook support group. 

The Sensory place 

A volunteer-led group offering a network of support to families of children with all disabilities aged 5-18 years. They offer courses and sensory-friendly events ( Including Sensory Sessions at South Durham Gymnastics and silent discos). They can help whether your child is a sensory seeker or avoider (or both). They also have a closed Facebook group

Autism Information Co Durham 

A closed group purely for the Parents/Carers of children with Autism and children currently going through the diagnosis process. A place for to provide help and support to you all and somewhere you post feeling secure that we are all in it together. They get together once or twice a month in person in the Spennymoor area.

Little Chefs Big Chefs (LCBC)

SEND Parents/Carers Drop In once a month – usually a Tuesday 10am-12pm. A drop in session for parents/ carers of children with special educational needs, or disabilities. LCBC Community Hub, Selby Close, DL14 9ED

North East Autism Society Family Support

They have a closed Facebook group for any help and support plus several friendly and inclusive toddler groups and family support sessions all over County Durham and other parts of the North East.

Durham County Carers Support

 They run several support groups for all carers all over County Durham and a parent support group in Bishop Auckland once a month.

OOOPS

The group supports people that are preparing for stoma surgery or already have a stoma for any reason. You could have IBS, IBD, Endometriosis or any other digestive system related complications. They run a support group every Monday ( except bank holidays) at Shotton Community Hub, Bridge Road, Shotton Colliery DH6 22PQ. Telephone Emma on 07706989149 or Claire on 07596712024

All Disabilities Matter

Based in Newton Aycliffe their facebook group was formed to support anyone who has any kind of disability, mental health issues or just wants somebody to talk to about all the daily struggles that life can throw at us, so we can all share our experiences with each other and where to go for help and support if needed.

They run regular events and groups. They host two weekly support groups on Wednesdays and Fridays for parents, carers, and individuals with disabilities. These offer participants the chance to share their experiences, seek peer support, and enjoy a chat. They also run a SEND social club on Monday evenings at Café HQ in Newton Aycliffe where  participants can take part in crafts, games, and music sessions, fostering a lively and social atmosphere. They also run monthly discos at the Phoenix Club  which allows everyone to come together and have fun.

Email: admin@alldisabilitiesmatter.com

Unique Abilities SEND

Non judgemental, non profit organisation to help people with SEND. They offer sensory sessions, youth sessions, advice support, guidance and day trips with other like minded people to help and support you. They run groups in Durham, Spennymoor and Newton Aycliffe. They run sensory session support groups every third Saturday of the month. Their  sessions are for all ages and allows people to be themselves around people who truly understand how you feel, whilst engaging in activities you can make friends with like minded people who understand what you are going through as well as giving you the opportunity to receive advice support and guidance from a member of our
team. They also run a youth abilities session every first Sunday of the month which offers not only activities for older children to enjoy but helps to teach life skills such as cooking to help prepare for adult life. Phone 07402269197 or email uniqueabilitiessend@hotmail.com

Sensory Processing Disorder Support Group North East England 

A support group run by Treetops Occupational Therapy. They have a closed Facebook page, run courses and training and meet regularly in Newton Aycliffe.

More links to support groups and short breaks etc on our Facebook page HERE

DIRECTORY- Durham Clinical Commissioning group useful sites PDF – added 18/3/22

Watersure Scheme 

Help with Water Bills – Info HERE

Durham welfare rights

Provide help with questions & problems on a wide range of social security benefits & tax credit issues. Open 9am – 12 noon. Telephone: 03000 268 968

Other benefit links – 

Note – MCT Durham PCF are not endorsing any of the above providers. This page is for info only.

Posted on: 19th March 2025